With over seven years since my Ehlers-Danlos Syndrome (EDS) diagnosis—and a lifetime spent suffering and learning—I have stories to tell and a treasure trove of research and practical tips that I truly believe will blow your mind.
This website will provide both in-depth, trusted resources that will change your life the way they’ve changed mine. I am always monitoring the very latest EDS research, and I will share crucial findings with you.
At its heart, this is a place to share my personal experience managing Ehlers-Danlos Syndrome, POTS, and a number of related medical conditions, all while showing up daily as a full-time caregiver to seven humans. Being chronically ill and still having to function as my best self has been a tremendously difficult road, and I’ve certainly fallen many times along the way.
I hope that my mistakes, as well as my successes, will both illuminate your path and provide you with a deep sense of community and understanding.
If you are suffering, please reach out. Having undergone dozens of massive surgeries and procedures in the last eight years, I have so much hard-won knowledge and support to share. Let’s navigate this journey together.
